torsdag 25. juni 2009

But a day (swedish Blott en dag by Lina Sandell)


This song is very important for me. It brings comfort and makes me know it is all for the better:) I decided to note the english translation by: A. Arwen Taylor...

But a day brings comfort, and a moment
Solace for my cares until the end.
All the more waits in my Fathers home,
And why should I, His child, be anxious then?

He who brings the early light of morning
portions out, as days break and arise,
joy and sorrow, labor, hope and longing
watching ever with a father`s eye.

He himself has walked with me in mercy,
grants for every breath, a breath of grace,
and He quiets every hour`s worry
with His power and councel every day`s.

Though uncertain often is my wandering,
I will fear no path I cannot see;
comes again this promise to my pondering:
As you want so shall your power be.

Help me, Lord, forever to remember
that my grieves and sorrows thou will bare,
that thy love and my faith ever tender
shelter in the hope of thy ward`s care.

So whate`er befalls me in life`s torrents
I will pray from out Thy, father`s, hand
but a day of comfort and a moment
till I reach that everlasting land.

Home again:)


Finally home again so i can give some updates.
I went to the hospital tuesday morning for a check at 9am. The doctor decided I should be "put in" right away but the ward was full so I had to wait for a bed. For another 4,5 hours! But they were all very nice and helped med the best they could:) I got food and comfort:)
The first day, nothing happened as I had to wait for the MRI. For some reason they shut down the machines around 4-5pm so after that, there would be no examinations.
I shared a two-bed room with a sweet 93 year old lady that wasn`t very sweet in the night. Now I know what it`s like with awake nights for families with babies. No offence but she kept me awake most of the night getting out of her bed to go to the restroom every other ten minutes because she was afraid to wet her bed. Her hearing aids kept whistling non-stop and I am convinced that`s what parents thinks of their kids first tries with a recorder...
They woke me up at 7.30am and I was scared to death when they waved with temperature and bloodpressure registrator over my head when I was still dreaming. Then breakfast and Andrea and Elise came to see me:) Doctor-visit and then I finally got the MRI appointment at 12.30am. But a nirse had to give me this IV thing in my arm. Not as bad as I feared and I didn`t pass out! hahaha
The rest of the day and night I had to wait...and wait... My mom and sister came to see me in the evening too so I didn`t feel too lonely;)
Another night without sleep... amazing how much energy there is in an old lady! So I got up and sat down on the balcony and a 17-year old girl joined me... She was TALKING... I mean not just chatting, really TALKING... and I wasn`t able to get away until 12.30pm and went to bed listenning to the concert of hearing aids until I finally fell asleep.
Another early wake-up and breakfast. Then Merete came to see me and I had to do the most feared Lumbar Punction... I was scared to death so they gave me a pill to calm down my nerves a bit. It didn`t work very well and the doctor came to send me up to heaven...or hell. I laid down and had the L.P. done. And I really don`t understand what I was afraid of!!! I barely felt a thing! And I even laughed of my own stupidity. So...now I am convinced I can do ANYTHING.
I got the wonderful results from the MRI that didn`t show any damage to the brain, neck or spine:) Still, I am not undiagnosed. The doctor says there is something I am suffering from but it takes further tests to find out what is wrong. The spine fluid looked good but they need to do some elctrical analyzis to make sure there is no inflammation or that my optic nerve inflammation isn`t a link to a disease. I guess I`ll have the answers next week.
My health hasn`t been the best the past days either. Parts of my face are still numb, I am very dizzy, my left leg is living it`s own life and I also lost much of the strenght in my arms and hands.
After I got home today, I have problems walking and standing. I suddenly loose balance and have to sit down on the floor but that might be a reaction to the fluid from the spine still running out through the spine discs. It doesn`t hurt much in my back but it is more a tingling feeling. Like someone tickle me and I can`t lift my arms or take deep breaths. Hopefully that will be gone till tomorrow:)
I am gonna enjoy being home again. The weather is beautiful and warm. The summer is finally here:)

p.s: I got flowers from my work today:) Wonderful people:)

mandag 22. juni 2009

Missing health...


There is alot going on in my life these days. Both good and bad.
I have for several months felt sick and in a bad health. This was comfirmed when I saw my doctor about two weeks ago. Since then, I have been in and out of the hospital and my doctor`s office. I am diagnosed with Rheumatoid arthrisis (that i have had most of my life) and my body is also infected with the mononucleosis virus. I`ve also had a huge loss of vision in my right eye and was examined by an eye specialist who diagnosed me with Optical nerve inflammation. This inflammation makes the doctors suspect that I have Multiple Sclerosis.
Today I had another appointment with my doctor and he confirmed that he is very concerned about MS and got me into the hospital today. I waited at the E.R. for FOUR hours just to be told that I had to go home and come back tomorrow at 9am. It makes me so frustrated how they can send people home like that just like if I am a football to be kicked around.
So tomorrow, hopefully, I will get a bed in there and ghet the tests done. So far i am comfirmed to go through an MRI of my head, neck and spine and get a Cortisone through Intravenous therapy (IV therapy). Hopefully that will give me some answers.
I have decided to do this blog to keep my friends and family updated on how things are going with me and my illnesses.
Thanking all of you who has been a great support for me the past weeks.
I love you all!